[5] They succeeded in getting the United States Congress to pass the Orphan Drug Act (ODA) in early 1983.

[7] Tourette syndrome was estimated by the National Institutes of Health to affect 100,000 people in the United States.

Meyers' son was helped by an experimental drug that the manufacturer ceased to develop because they assumed it would not be profitable enough.

NORD maintains a Corporate Council made up of companies in the pharmaceutical, biotechnology and clinical research industries.

[11] Members include: NORD is engaged in partnerships with a number of patient advocacy groups and industry organizations.