Ryan Wayne White (December 6, 1971 – April 8, 1990)[1] was an American teenager from Kokomo, Indiana, who became a national poster child for HIV/AIDS in the United States after his school barred him from attending classes following a diagnosis of AIDS.
As a hemophiliac, White became infected with HIV from a contaminated factor VIII blood treatment and, when diagnosed in December 1984, was given six months to live.
When White tried to return to school, irate parents and teachers in Howard County rallied against his attendance due to unwarranted concerns of the disease spreading to other students and staff.
A lengthy administrative appeal process ensued, and news of the conflict turned White into a popular celebrity and advocate for AIDS research and public education.
In the U.S., that perception shifted with the media focus placed on White and other prominent heterosexual HIV-infected people such as Magic Johnson, Arthur Ashe and the Ray brothers, although these cases were often framed as "innocent"—a contrast to gay men who were seen as "guilty" subjects.
Through the "Ryan White programs" it funds, the Act has become the largest provider of services for people living with HIV/AIDS in the United States.
A lengthy public battle to determine who should be recognized as the discoverer of the human retrovirus delayed development of a test for what would later be called HIV.
White had apparently received a contaminated treatment of factor VIII that was infected with HIV, as did thousands of other Americans with hemophilia and hemophiliacs around the world.
[6] Western Middle School in Russiaville faced enormous pressure from many parents and faculty to prevent White from returning to the campus after his diagnosis became widely known.
The study concluded that the risk of infection was "minimal to nonexistent," even when contact included sharing toothbrushes, razors, clothing, combs, and drinking glasses; sleeping in the same bed; and hugging and kissing.
[23] The editors and publishers of the Kokomo Tribune, which supported White both editorially and financially, were also ridiculed by members of the community and threatened with death for their actions.
When a bullet was fired through the Whites' living room window (no one was home at the time), the family decided to leave Kokomo.
[27] The publicity of Ryan White's story catapulted him into the national spotlight, amidst a growing wave of AIDS coverage in the news media.
[28] While isolated in middle school, White appeared frequently on national television and in newspapers to discuss his tribulations with the disease.
Many celebrities appeared with him, starting during his trial and continuing for the rest of his life, to help publicly destigmatize socializing with people with AIDS.
Singers John Mellencamp, Elton John and Michael Jackson, actor Matt Frewer, diver Greg Louganis, President Ronald Reagan and First Lady Nancy Reagan, Surgeon General Dr. C. Everett Koop, Indiana University basketball coach Bob Knight and basketball player Kareem Abdul-Jabbar all befriended White.
His celebrity crush, Alyssa Milano of the then-popular TV show Who's the Boss?, met White and gave him a friendship bracelet and a kiss.
Ryan White told the commission of the discrimination he had faced when he first tried to return to school, but how education about the disease had made him welcome in the town of Cicero.
Ryan White had a small cameo appearance as "Chad" in the film, playing a boy who also has HIV and later befriends Haas.
[30] Over 1,500 people attended White's funeral on April 11, a standing-room only event held at the Second Presbyterian Church on Meridian Street in Indianapolis.
[37] Ryan White was one of a handful of highly visible people with AIDS in the 1980s and early 1990s who helped change the public perception of the disease.
Other public figures who were infected with HIV included Keith Haring, Holly Johnson, Freddie Mercury, the Ray brothers, Magic Johnson, Greg Louganis, Arthur Ashe, Liberace, Eazy-E, Tim Richmond, Anthony Perkins, Randy Shilts, Ricky Wilson, Ofra Haza, Robert Reed, and Jerry Smith.
[38] The money raised has also helped fund the Ryan White Infectious Disease Clinic at the hospital to take care of the nation's sickest children.
In a 1993 interview, prominent gay rights and AIDS activist Larry Kramer said, "I think little Ryan White probably did more to change the face of this illness and to move people than anyone.
The foundation worked to increase awareness of HIV/AIDS-related issues, with a focus on hemophiliacs like Ryan White, and on families caring for relatives with the disease.
She became a spokeswoman for AIDS activism and continued to arrange speaking events through the site devoted to her son, ryanwhite.com (no longer online as of October 2020).
Elton John donated proceeds from "The Last Song," which appears on his album The One, to a Ryan White fund at Riley Hospital.
"[48] In the early 1980s, AIDS was known as gay-related immune deficiency, because the disease had first been identified among primarily homosexual communities in Los Angeles, New York City, and San Francisco.
[40] White and his family strongly rejected the language of "innocent victim" because the phrase was often used to imply that gays with AIDS were "guilty".