The chief executive is Dr Ava Easton who is also a researcher (Honorary Fellow in the Department of Clinical Infection, Microbiology and Immunology, University of Liverpool) and global expert on encephalitis patient outcomes and quality of life.
The charity holds virtual webinars and support groups, as well as face-to-face events, weekends for children and their families, and adult retreats.
Encephalitis International has a resource library[2] on paper and online, and provides information in digital formats: e-learning, animations and videos (e.g., Youtube[3]).
They also give travel bursaries to medical students and junior physicians in low-to-middle income countries to attend the Encephalitis Conference.
It works in partnership with other neurological charities and health organisations at national and international level, to support rapid diagnosis and access to services.
Its Scientific Advisory Panel consists of experts in encephalitis, including as of 2023[update] Tom Solomon, Angela Vincent, and Barbara Wilson.
In 2023, Encephalitis International's "Don't Delay: Give Today" appeal raised over £43,000 from supporters across the world towards beginning the design and implementation of training opportunities for medical professionals globally.
On their "become a corporate partner" webpages, these organisations are listed from a range of sectors such as pharmaceutical, diagnostic, legal, travel health and marketing.
[4] Encephalitis has a higher incidence than motor neurone disease, bacterial meningitis and multiple sclerosis in several countries.
[8] It holds weekends for families, and adult retreats and operates a global volunteer scheme called Team Encephalitis.