[2] The charity was founded as the Tourette Syndrome (UK) Association in 1980 by a small group of parents of children with TS, who came together for mutual support.
A windfall from Big Brother 2006 winner Pete Bennett[3] gave the organisation the opportunity to plan for future development to reach a higher percentage of the 300,000 children and adults in the UK with TS.
Tourettes Action's services include a Helpline, information packs, conferences and workshops, support groups, camps for teenagers, help finding specialists, networks among professionals, ID cards for people with a diagnosis of TS, free monthly email newsletters and an online forum.
[4] Ruth Ojadi, organiser of the London Tourettes Action group,[5] appeared in a BBC documentary titled Tourettes: I Swear I Can Sing, broadcast on BBC in December 2011.
The documentary follows her over a number of months as she focuses on her ability to sing and her newfound confidence.