Arturo Porzecanski

[8] Besides devoting himself to teaching, mentoring and policy-oriented research in his field, Porzecanski has provided expert-witness and other consulting services to law firms and institutional investors, as well as to U.S. government agencies and multilateral organizations.

[12] Since late 2005, Porzecanski has struggled with an exceedingly rare illness, Systemic Capillary Leak Syndrome (SCLS), which left him partially disabled and brought him near death several times.

He became an international advocate for those affected by the disease, setting up a website for patients, caregivers and physicians around the world to share information and provide support, and serving as its resident expert.

[15] In 2016, the National Institutes of Health publicly acknowledged Porzecanski's "indispensable" role in spreading awareness of SCLS and in enabling NIH scientific research on the deadly disease.

[16] In 2018, Porzecanski won a lawsuit against the Secretary of the U.S. Health and Human Services Department in U.S. federal court, which overturned a Medicare denial of treatment with intravenous immunoglobulin (IVIG), a therapy which has become the standard of care for SCLS patients.