Their four-part mission includes propelling drug research and development through a series of strategic investments, strengthening patient support, increasing public awareness of NF and establishing best practices in clinical care for affected individuals.

In 2006, the Foundation began funding a drug discovery initiative and piloted a program for a network of NF clinics.

[6] In 2014, the Foundation established Synodos for NF2, a first-of-its kind collaboration of NF scientists working across institutions to find a cure for NF2.

[6] The Foundation publishes educational brochures for patients, their caregivers and other interested parties on a variety of subjects.

In addition to these efforts, The Foundation also sponsors an annual summer camp for youth living with NF.

[15] As a part of their efforts, CTF organizes volunteers to petition their representatives in Congress and the Senate online, by letter and in person, to urge continued and increased funding through both the CDMPR-NFRP and the National Institutes of Health.