The Foundation was established in 1999 by the family and friends of Sam Berns, a child with progeria, including Dr. Leslie Gordon and Dr. Scott Berns, his parents, and Audrey Gordon, his aunt.
[1] From their website, the Foundation's mission statement is: "To discover treatments and the cure for Progeria and its aging related disorders."
[1][2] In 2020 the American Food and Drug Administration approved the use of lonafarnib[3] in children with the disease based on research and funding provided by the Foundation.
[4] One of PRF's major campaigns is Find the Other 150, the goal of which is to identify and diagnose as many progeria patients as possible globally.
This article about a United States health organization is a stub.