[1] It works with the NHS and other agencies to co-ordinate a national plan for delivery of services to Huntington's patients and their families.
[5] The charity funds nine specialist services across Scotland's regions to assist with access to nursing, welfare and other support.
[6] It has been estimated that 16 in every 100,000 people in Scotland are living with the illness and the charity has reported an increase in referrals in recent years.
[4][7] The charity also delivers youth services to young people who may be affected by the disease and works to raise awareness of the condition.
In 2015, SHA and Stirling University received a prize at the Scottish Charity Awards for a joint project to design an accredited course to improve the awareness and knowledge of huntington's disease among health and social care staff in Scotland.