In the context of global advancements in recognizing the rights of people with disabilities, the alliance emphasizes that the unique needs of the ASDD community that have historically been overlooked.
The consensus declaration presented by the alliance serves as a call to action, urging the European Union to listen to the voices of people with ASDD and implement real, lasting solutions.
The alliance envisions a 'social Europe' that establishes common standards, fosters increased cooperation, and brings about tangible change for individuals with ASDD.
The consensus paper served as a cornerstone for advocacy on skeletal dysplasias, analyzing the comprehensive needs of these conditions, including issues related to stigma, health, social protection, and barriers in education and employment.
[4][5] Skeletal dysplasias (SD), or osteochondrodysplasias, encompass over 450 rare conditions linked to cartilage and bone disorders, resulting in varying degrees of short stature.