It is the oldest survivor-led cancer advocacy organization in the country, and works to effect policy change at the national level.

One year later, NCCS convened other patient advocates to create the Cancer Leadership Council (CLC).

[12] In 2010, NCCS became one of four patient-centered organizations invited to a membership of the Commission on Cancer (CoC) of the American College of Surgeons.

[13] The Cancer Survival Toolbox is a free, self-learning audio program, developed through collaboration with patient advocacy organizations and health care and social work professionals to help people develop important skills to better meet and understand the challenges of their illness.

The program, first published in 1998, contains a set of basic skills to help navigate a diagnosis and special topics on key issues faced by people with cancer.

[17] Journey Forward was launched in February 2009 through a partnership between NCCS, WellPoint, Inc., the UCLA Cancer Survivorship Center and Genentech.