Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) is a 501(c)(3) nonprofit organization that provides support, education, advocacy, and awareness association for pulmonary hypertension.

Singer Chloe Temtchine, who suffers from pulmonary venoocclusive disease (PVOD), which accounts for a small number of pulmonary hypertension cases, wrote her song "Be Brave" shortly after she was released from a hospital's critical care unit, and donates 50% of sales proceeds to the PHA.

The goal was to connect pulmonary hypertension patients with one another, help locate pulmonary hypertension specialists and centers, form support groups, and publish a newsletter about the pulmonary hypertension community.

In 1990, the women started a mailing newsletter, Pathlight, to about 100 people and a fourth woman soon connected with the three pulmonary hypertension patients; the United Patients Association for Pulmonary Hypertension was formed the same year.

[2] United Patients Association for Pulmonary Hypertension officially changed its name to the Pulmonary Hypertension Association (PHA) in 1997 and hired its first full-time staff member in 1999.