The Canadian Organization for Rare Disorders (CORD) is a Canadian registered charity that is a network of organizations who represent people affected by rare diseases.
CORD's purpose is to provide a strong common voice advocating for a healthcare system and health policy for those with rare disorders.
[1][2] CORD represents the orphan disorders community in the development of Canadian Orphan Drug Policy, including the proposed Expensive Drugs for Rare Disorders program within the National Pharmaceutical Strategy CORD is working to promote state-of-the-art Newborn Screening in all provinces and territories.
CORD is working to ensure Canada's Clinical Trials Registry works effectively for those with rare disorders.
[3][4] Their national offices are located in Toronto, Ontario, with an Alberta chapter located in Edmonton, Alberta.