RareConnect is a platform where patients and families share their experiences and knowledge about living with a rare disease.

To empower the rare disease community by bringing people together to share experiences and support one another.

It offers a safe-patient-hosted online community for both patients and caregivers who are affected by rare diseases to communicate freely and safely with each other.

[4] The communities on RareConnect are maintained and moderated by an individual who has a similar rare disease and are also associated with a patient group.

Translations include English, French, German, Italian, Portuguese, Spanish, Russian, Serbo-Croatian, Czech, Ukrainian and Japanese.